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42-40 Bell Boulevard, Suite 205, Baltimore, MD 21214

Provides education, support, and referrals for individuals with Tourette Syndrome. Public Education and Information, Support Groups More information: 

  • Includes meetings, referrals, literature, films, treatment, and research
  • Provides presentations for organizations upon request

1419 Forest Drive, Suite 100, Annapolis, MD 21403

Offers medical care for basic health needs, including primary care, annual physicals, and chronic disease management. Medical Care More Information:

  • Provides health education
  • Performs wellness exams

733 Third Avenue, New York, NY 10017

Provides information and referral services related to inflammatory bowel diseases. Helplines and Information, Public Education and Information More information: 

  • Distributes printed materials on colitis, Crohn's disease, ulcerative colitis, and related conditions
  • Coordinates an annual nutrition expo and community walk
  • Hosts seminars featuring speakers on medical, psychological, and nutritional topics
  • Offers support groups for patients and their families

1829 Reisterstown Road, Suite 350, Pikesville, MD 21208

Provides information, resources, and support related to dyslexia and reading challenges.

Helplines and Information, Public Education and Information

More information:

  • Offers educational materials for families and educators
  • Provides guidance on effective reading instruction
  • Refers individuals to trained professionals
  • Offers teacher training, certification, and accreditation programs
  • Provides community education, publications, and events to support literacy

6925 Oakland Mill Road, Columbia, MD 21045

Provides information and referral services related to retinal degenerative diseases, including retinitis pigmentosa, macular degeneration, and Usher syndrome. Helplines and Information, Public Education and Information More information:

  • Offers an e-newsletter on coping strategies, research updates, and Foundation news
  • Hosts a bi-annual national conference

701 Glenwood Street, Annapolis, MD 21401

Offers medical care for basic health needs, including primary care, annual physicals, and chronic disease management. Medical Care More Information:

  • Provides health education
  • Performs wellness exams

1350 Broadway, Suite 1530, New York, NY 10018

Offers information, education, support, and referrals on Parkinson's disease. Helplines and Information, Public Education and Information More information:

  • Answers questions about Parkinson's diagnosis, treatment, daily living, caregiver concerns, research, and more
  • Provides referrals to health professions and local community resources
  • Offers customized information packs, digit and print versions

1155 15th Street Northwest, Suite 540, Washington, DC 20005

Offers information and printed materials on Down syndrome. Helplines and Information More information:

  • Includes guides for new and expectant parents, caregivers, and a general brochure

30 East 33rd Street, New York, NY 10016

Provides support, education, information, and referrals on kidney disease, organ donation, or transplantation. Helplines and Information, Public Education and Information More information: 

  • Offers tailored education programs on every stage of kidney disease and the transplantation process
  • Hosts periodic seminars on kidney research and treatment in the National Capital Region

1201 15th Street Northwest, Suite 410, Washington, DC 20053

Operates a helpline staffed by healthcare professionals that provides information and support on blood cancers and diseases. Helplines and Information, Public Education and Information More information: 

  • Provides resources on terminology, diagnosis, treatments, research, coping with illness, and patient service programs

7901 Jones Branch Drive, Suite 240, Mc Lean, VA 22102

Provides food allergy information, education, and referrals. Helplines and Information, Public Education and Information

200 East Wells Street, Baltimore, MD 21230

Helps businesses, government agencies, and schools provide accessible information and services to the blind community. Public Health and Safety

2451 Crystal Drive, Suite 900, Arlington, VA 22202

Provides information and resources related to diabetes. Helplines and Information, Public Education and Information

3540 Crain Highway, Bowie, MD 20716

Provides trained information specialists to answer questions about epilepsy and seizures. Helplines and Information, Public Education and Information More information:

  • provides support, guidance, and referrals to national and local resources
  • Assists individuals living with epilepsy, their caregivers and friends, and anyone interested in learning more

13 Class Court, Suite 200, Parkville, MD 21234

Provides information about hemophilia and other bleeding disorders. Public Education and Information, Helplines and Information More information: - Includes information on support groups

15 Charles Plaza, Unit 3002, Baltimore, MD 21201
Provides support and activities for children and adults who are blind or visually impaired. Recreation/Social More information:
  • Organizes monthly meetings, picnics, parties, and other local gatherings 
  • Provides literature and Aide such as white canes, Braille writing materials, and talking equipment
688 East Main Street, Salisbury, MD 21804

Conducts a community awareness campaign to educate the public and advocate about epilepsy. Public Education and Information

More information: - Publishes a newsletter, operates an ID bracelet program, and offers school presentations - Co-sponsors a summer day camp for youth with developmental disabilities

108 East Main Street, Salisbury, MD 21801

Offers a year-long program providing information about pre-diabetes and how to change eating and exercise habits to lessen the chances of getting a diabetes diagnosis.

Public Education and Information More information:

  • Classes held 4 times a year

500 West Madison Street, Suite 1000, Chicago, IL 60661

Provides education, information, and resources on mood disorders like depression and bipolar.  Helplines and Information, Public Education and Information More information:

  • Includes treatment and support options

120 Longwater Drive, Suite 105, Norwell, MA 02061

Educates the public on rare diseases and refers patients to resources for assistance and support. Helplines and Information, Public Education and Information

5601 Fishers Lane, Rockville, MD 20852

Offers information on HIV and AIDS research, treatment, and clinical trials. Public Education and Information, Helplines and Information More information: 

  • Provides copies of federally approved treatment guidelines and information by mail

1016 West Jackson Boulevard, Suite 1073, Chicago, IL 60607

Provides students with neuromuscular disease financial support to pursue academic goals. Financial Assistance More information:

  • Applications open early each calendar year and individuals are notified by early summer

11654 Plaza American Drive, Suite 725, Reston, VA 20190
Provides training to African American women affected by breast cancer so that they make become advocates, with a focus on ending disparities in the Black community. Health Education/Prevention More information:
  • Advocacy can involve speaking, media, writing to Congress, panels, and sharing literature
18 Tremont Street, Suite 308, Boston, MA 02108

Provides information, referrals, and support for individuals living with obsessive compulsive disorder (OCD), hoarding, and body dysmorphic disorder.

Helplines and Information, Public Education and Information More information: 

  • Information available on the website, by mail, in quarterly newsletters, and other materials
  • Funds research to better understand these disorders
  • Holds annual conferences